The 20 Best Krabbe Disease Doctors Near Me in New York, NY

Find the Top Krabbe Disease Experts and Specialists

The 20 Best Krabbe Disease Doctors near New York, NY

Last Updated: 02/22/2026

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MediFind found 9 doctor with experience in Krabbe Disease near New York, NY. Of these, 6 are Advanced, 2 are Experienced and 1 are Distinguished.

Location
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9 providers found
    Gustavo H. Maegawa
    Distinguished in Krabbe Disease
    Medical Genetics
    Distinguished in Krabbe Disease
    Medical Genetics

    CUIMC/NewYork-Presbyterian Morgan Stanley Children's Hospital

    3959 Broadway, 
    New York, NY 
     (9.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Gustavo Maegawa is a Medical Genetics provider in New York, New York. Dr. Maegawa is rated as a Distinguished provider by MediFind in the treatment of Krabbe Disease. His top areas of expertise are Krabbe Disease, Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, and Gaucher Disease. Dr. Maegawa is currently accepting new patients.

    Advanced in Krabbe Disease
    Pediatric Neurology
    Advanced in Krabbe Disease
    Pediatric Neurology

    Office

    10 Union Sq E Frnt 5G, 
    New York, NY 
     (1.6 miles away)
    Languages Spoken:
    English

    Hillary Raynes is a Pediatric Neurologist in New York, New York. Dr. Raynes is rated as an Advanced provider by MediFind in the treatment of Krabbe Disease. Her top areas of expertise are Autism Spectrum Disorder, Krabbe Disease, Adrenoleukodystrophy (ALD), and Seizures.

    Advanced in Krabbe Disease
    Advanced in Krabbe Disease

    Helen L. & Martin S. Kimmel Hyperbaric & Advanced Wound Healing Center

    240 E 38th St Fl 13, 
    New York, NY 
     (2.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Robert Charlson is a Psychiatrist in New York, New York. Dr. Charlson is rated as an Advanced provider by MediFind in the treatment of Krabbe Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, and Krabbe Disease.

    Learn about our expert tiers
    Experienced in Krabbe Disease
    Experienced in Krabbe Disease

    Neurology Associates

    222 E 41st St Fl 99, 
    New York, NY 
     (3.2 miles away)
    Languages Spoken:
    English

    Gregory Pastores is a Neurologist in New York, New York. Dr. Pastores is rated as an Experienced provider by MediFind in the treatment of Krabbe Disease. His top areas of expertise are Gaucher Disease, Farber Lipogranulomatosis, Fabry Disease, and Trimethylaminuria.

    Alejandro D. Iglesias
    Advanced in Krabbe Disease
    Pediatrics | Medical Genetics
    Advanced in Krabbe Disease
    Pediatrics | Medical Genetics

    CUIMC/NewYork-Presbyterian Morgan Stanley Children's Hospital

    3959 Broadway, 
    New York, NY 
     (9.4 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Alejandro Iglesias, MD is Assistant Professor of Pediatrics, Director of the Inherited Metabolic Program, Program Director of the Medical Genetics Residency program and Attending Physician in the Division of Medical Genetics, Department of Pediatrics at New York Presbyterian Hospital/Columbia University Medical Center. He is a clinical and biochemical geneticist primarily interested in inherited metabolic disorders and neurogenetics and dysmorphology. In his role as Director of the Inherited Metabolic Program he is deeply involved in all aspects related with the diagnosis, management and overall care of patients and families with these disorders. In addition, he is in charge of the education of young physicians and medical students in the field of IMD. As an educator, he is in charge of the medical biochemistry lecture series for the first year medical students at the Physicians & Surgeons Medical School at Columbia University paving the way for a new generations of brilliant medical students at Columbia University. Finally, his involvement with the diagnosis and care of patients with X-linked adrenoleukodystrophy has been one of his main accomplishments in the recent years, especially since the introduction of newborn screening in New York State. He has a been involved from the beginning in the development of the program and is active member of the NYS group of metabolic physicians taking care of these patients. In addtion he has been actively involved in all developments asscoiated with newborn screening for Krabbe disease and Pompe disease. Dr. Iglesias is rated as an Advanced provider by MediFind in the treatment of Krabbe Disease. His top areas of expertise are Hypotonia, Microcephaly, Achalasia Microcephaly Syndrome, and Cortical Dysplasia.

    Paul A. Levy
    Advanced in Krabbe Disease
    Pediatrics
    Advanced in Krabbe Disease
    Pediatrics

    The Children's Hospital At Montefiore

    3415 Bainbridge Avenue, 
    Bronx, NY 
     (13.3 miles away)
    Languages Spoken:
    English

    Paul Levy, MD, is Director, Center for Inherited Metabolic Disorders and Director, Inherited Metabolic Disease Specialty Care Referral Center at the Children’s Hospital at Montefiore Einstein. He is also Associate Professor, Pediatrics and Pathology at our Albert Einstein College of Medicine. Dr. Levy sees patients with complex medical issues that may have a genetic etiology. He has a special interest in inherited metabolic disorders, including phenylketonuria (PKU), lysosomal storage diseases and urea cycle disorders, and sees newborns referred by the New York State Newborn Screening Program with positive screens. Dr. Levy is rated as an Advanced provider by MediFind in the treatment of Krabbe Disease. His top areas of expertise are Krabbe Disease, Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), and N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3.

    Melissa P. Wasserstein
    Advanced in Krabbe Disease
    Advanced in Krabbe Disease

    The Children's Hospital At Montefiore

    3415 Bainbridge Avenue, 
    Bronx, NY 
     (13.3 miles away)
    Languages Spoken:
    English

    Melissa Wasserstein is a Pediatrics provider in Bronx, New York. Dr. Wasserstein is rated as an Advanced provider by MediFind in the treatment of Krabbe Disease. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Reticulohistiocytoma, and Splenomegaly.

    Advanced in Krabbe Disease
    Pediatrics
    Advanced in Krabbe Disease
    Pediatrics

    Mount Sinai School Of Medicine

    1428 Madison Ave, 
    New York, NY 
     (6.0 miles away)
    Languages Spoken:
    English

    Jaya Ganesh is a Pediatrics provider in New York, New York. Dr. Ganesh is rated as an Advanced provider by MediFind in the treatment of Krabbe Disease. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Pompe Disease, and Danon Disease.

    Experienced in Krabbe Disease
    Pediatric Neurology
    Experienced in Krabbe Disease
    Pediatric Neurology

    Office

    180 Fort Washington Ave Fl 5, 
    New York, NY 
     (9.3 miles away)
    Languages Spoken:
    English

    Jennifer Gelinas is a Pediatric Neurologist in New York, New York. Dr. Gelinas is rated as an Experienced provider by MediFind in the treatment of Krabbe Disease. Her top areas of expertise are Epilepsy, Seizures, Krabbe Disease, and Memory Loss.

    Showing 1-9 of 9

    Last Updated: 02/22/2026

    What is the definition of Krabbe Disease?

    Krabbe disease is a rare genetic disorder of the nervous system. It is a type of brain disease called leukodystrophy.

    When should I see a Krabbe Disease doctor near New York, NY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Krabbe Disease doctor near New York, NY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Krabbe Disease doctors near New York, NY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Krabbe Disease doctors near New York, NY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Krabbe Disease doctor near New York, NY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Krabbe Disease doctor search results page. 

    Why is it important to get a second opinion from a different Krabbe Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Krabbe Disease doctor near New York, NY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Krabbe Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Krabbe Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Krabbe Disease doctors near New York, NY?

    Look for the filter feature on the left side of the Krabbe Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Krabbe Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Krabbe Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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